Tuesday, 30 May 2017

New Meds

I've been feeling down, the pain getting to me, along with the rain and miserable chilly damp weather.

I saw my doctor yesterday, and have two new prescriptions. One is a NSAID, a non-steroidal anti-inflammatory drug, a new one for me as I spent more than 10 years on Naprosyn, for the joint pain that has plagued me since my twenties.

Between the usual, my usual, MS symptoms, and the pain, it's been a rough year so far. My fatigue is so bad, I'm the Queen of Naps, an expert at the afternoon snooze. Does the pain make the fatigue worse, I'd say yes, as activity is a struggle.

The second medication I'm going to try is for nerve pain. That's very definitely related to the MS. I have pain running down the outside of my legs, numbness in my feet and stabbing pins and needles in my right thigh. Then there's the sharp stabbing pain in my fingertips...all nerve related.

So, I've taken the one new medication this morning, and am awaiting the results though the paper explaining the drug says it needs two weeks for full effect.

Today should have been a crash day, after driving out of town to the doctor, waiting for the prescriptions, shopping for a few groceries, but I feel surprisingly good. I've been on my computer, have walked out to water my plants and have the dishes done, almost as the last pan is still soaking.

We'll just have to wait and see. Here's hoping.

Wednesday, 24 May 2017

In my Garden

My daughter and her husband took me to Canadian Tire today to get the mulch for my garden and the last of the plants I needed. I do so love the slave labor.

As I was not up to walking too far today I used the walker so I could sit when needed. Back home I sat on the grass and watched my son-in-law spread the mulch while my daughter planted the last of the plants. It was great to have the help to get a few things done that would tax my energy and cause me pain.

 I was sitting in the walker on the grass and streaming out the fairy lights as my son-in-law attached them to the trio of trellises against the wall. I pushed the walker back a bit, and suddenly felt myself falling backward. Luckily for me I was able to stand, if I had fallen back I would have smashed my head on the concrete sidewalk behind me.

The bruise I have on my shin from earlier moving the patio chair is all the injury I need for today. I had a close call, but a beautiful garden.

Tuesday, 2 May 2017

Annual MS Walk

This is the 4th year that my wonderful family gathered to make the MS Walk. It was a dull and dreary day, rainy and wet but that didn't dampen our spirits.

I picked the little ones up at the half way point, and took them to the school, the meeting point. There we listened to music as we waited for the gang to arrive. We had lunch and took part in the usual festivities...the silent auction, the awards. We won the award for most spirited team, which we can add to our awards from previous years, team name and team costume.

We wear neon green T-shirts as of year 2. The next year we added baseball type caps, in black with a neon green brim. I also made name tags, the ones in plastic covers you can hang around your neck, in, of course, neon. I did each person's name in a different font and added the team name on the back. I figured we could add the years as we went along.

I found some neon green mitts for the kids, which were a welcome item this year as it was cold and damp.

Not sure what to add next year, shoe laces maybe, or scarves.

I don't know if the family realizes how important this day is for me. It is like Christmas, only I get the big gift. I love seeing the team picture every year, and find it amazing to see the changes in the grandkids.

This year I saw a woman in an electric wheelchair, totally dependent. She was there with her helper, and for the first time, it bothered me. I felt a sense of fear and dread, could that be me, and how soon? I guess it hit me worse this year because I struggle more every day, can feel this downward spiral I've been on the last few years.

I have given up more and more, so I want to hold on tight to what I can do. I fear the day when I can no longer be creative, and am not sure what I will do when that day comes.

Didn't want to put a damper on the good mood, but I need to be honest with myself. "It is what it is".