This is the 4th year that my wonderful family gathered to make the MS Walk. It was a dull and dreary day, rainy and wet but that didn't dampen our spirits.
I picked the little ones up at the half way point, and took them to the school, the meeting point. There we listened to music as we waited for the gang to arrive. We had lunch and took part in the usual festivities...the silent auction, the awards. We won the award for most spirited team, which we can add to our awards from previous years, team name and team costume.
We wear neon green T-shirts as of year 2. The next year we added baseball type caps, in black with a neon green brim. I also made name tags, the ones in plastic covers you can hang around your neck, in, of course, neon. I did each person's name in a different font and added the team name on the back. I figured we could add the years as we went along.
I found some neon green mitts for the kids, which were a welcome item this year as it was cold and damp.
Not sure what to add next year, shoe laces maybe, or scarves.
I don't know if the family realizes how important this day is for me. It is like Christmas, only I get the big gift. I love seeing the team picture every year, and find it amazing to see the changes in the grandkids.
This year I saw a woman in an electric wheelchair, totally dependent. She was there with her helper, and for the first time, it bothered me. I felt a sense of fear and dread, could that be me, and how soon? I guess it hit me worse this year because I struggle more every day, can feel this downward spiral I've been on the last few years.
I have given up more and more, so I want to hold on tight to what I can do. I fear the day when I can no longer be creative, and am not sure what I will do when that day comes.
Didn't want to put a damper on the good mood, but I need to be honest with myself. "It is what it is".